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Please take the time to look through these resources.  They have all been shared by our members as things that help them in managing their symptoms and in living with FND.

Noise Cancelling Headphones

Noise Cancelling Headphones

4 May 2023
Image credit: sony.com.au For some people with FND, sensory input can make their symptoms worse... including triggering involuntary spasms or non-epileptic seizures, affecting physical and cognitive fatigue.  Noisy environments are quite tiring for me and at their worst can affect my cognition, speech and voluntary moment. I've been using Loops Experience Plus for quite awhile when I'm out and about but sometimes they aren't quite enough. (You can read our post on Loops here) Wh…
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Emergency Plus App

Emergency Plus App

6 December 2022
In an emergency, time and location accuracy are critical. By downloading the free Emergency Plus app, you’ll equip yourself with a powerful tool that will help you call Triple Zero (000) quickly, and allow you to accurately communicate your location to emergency call-takers. Developed by Australia’s Emergency Services, and their government industry partners, it takes the stress out of finding number or keypads to type numbers. The app allows anyone to access emergency numbers very easily. …
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Julian’s Key Health Passport

Julian’s Key Health Passport

6 December 2022
Julian’s Key Passport was initially designed for individuals with an intellectual or cognitive disability. This passport idea came about as a result of of a young man named Julian who had a disability but unfortunately passed away in 2011 at Ipswich Hospital. The West Moreton Hospital and Health system decided to develop the passport where it has since been trialed for two years at Ipswich and Logan Hospitals. While the trial was completed in 2021, the recommendations from the trial are cu…
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Loop Earplugs (Loops)

Loop Earplugs (Loops)

4 December 2022
Image credit: au.loopearplugs.com Many people with FND become more sensitive to sound. Some people can be triggered by loud or unexpected noises. Others find that busy environments such as a shopping centre or a pub can cause sensory overload. In such situations, filtering out the unwanted noise can be extremely difficult. One possible solution is loop earplugs (loops). Loop earplugs help you avoid sensory overload by reducing annoying or loud sounds.There are different loops available for…
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Clock Yourself

Clock Yourself

3 December 2022
Before trying this one out on your own, we'd definitely recommend chatting to your treating medical and/or allied health professionals. Get their thoughts on how to best introduce it into your rehabilitation treatment or everyday exercise plan. A few of our contributors regularly use the Clock Yourself App to help with balance, coordination and movement initiation. It's one of the neurological rehabilitation tools used by a popular FND-focused neurophysiotherapy clinics in Brisbane. Cloc…
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Quiet Hour at your local Coles and Woolworths supermarkets

Quiet Hour at your local Coles and Woolworths supermarkets

2 December 2022
Image credit: Woolworths Group. If you have high sensory registration and struggle with the sensory onslaught of loud PA announcements, crashing trolleys, changes in temperature, smells from the bakery, deli, butcher, seafood and gardening sections, staff with their large oversized cages parked in aisles in the way filling shelves that you have to carefully manoeuvre around, then you might find the "Quiet Hour" offered by supermarket giants Coles and Woolworths appealing. Woolworths doesn'…
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C963MR Senior man having a stroke. He is experiencing facial weakness.

Facial Droop

2 December 2022
Image credit: healthdirect.gov.au. One of our contributors has kindly shared this tip to help with facial droop:Try pressing your tongue very firmly to the inside of your cheek on the side that is drooping. Then while you are pressing your tongue inside your cheek, move it upwards and downwards. Then repeat this time moving your tongue side-to-side in each direction. This will help your brain to recognise and remap the drooping parts of your face and remind the muscles how to work correctl…
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Word-Finding Difficulties? Learning a language might help.

Word-Finding Difficulties? Learning a language might help.

2 December 2022
One of our contributors noticed they were having more difficulty with word-finding (also known as anomia or anomic aphasia). They were struggling to find the right words and resorting to "you know the thing?". Or the wrong word was coming out by accident. Like many FND symptoms, it was worse when they were fatigued, in lot of pain or feeling strong emotions. You might not know that when learning a new language, most people switch back and forth between the new language and their native la…
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Memory – medications and exercise

Memory – medications and exercise

2 October 2022
The MyTherapy App (https://www.mytherapyapp.com/) is promoted as a medication reminder and tracker app but it can be handy for so much more. You can add one-off entries for medication, measurement (think blood pressure, blood sugar), lab values (blood test results), activity or symptom check (fatigue or pain scale anyone?). Better yet, set up a schedule and this app will politely nag you until you confirm you've taken the meds or measurement, done the activity or recorded your symptoms. If y…
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Please note: This site is created by people with FND and we do not claim to be health professionals. The resources and strategies on these pages are generously shared as by our members as things they have found useful. Please consult with your treating practitioners to make sure they are right for you before before trying them out yourself.

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